Category Archives: Caregving,
A Journey to Acceptance: My Eye-Opening Experience with Medical Marijuana
I was born and raised in Miami, Florida — in the middle of chaos and change. The city I grew up in during the 70s and 80s was a powder keg of race riots, refugees, and drugs. Miami was overrun — and that’s putting it kindly. Cocaine, marijuana, and the war on drugs were everywhere.
I never touched any of it. Not once.
It was a badge of honor, a personal vow. My father was a judge, and I took pride in the discipline that kept me away from substances that, to me, represented weakness and failure. I saw alcohol as adult, social, and controlled. Marijuana? That was for the lost.
For most of my life, I never questioned that belief.
But life has a way of testing the walls we build around our certainty.
When my wife’s illness began to take over our nights, sleep became hard. She was in constant pain, and nothing — not the pills, not the prescriptions, not the endless “next options” — brought her relief without a cost. Then one night, she tried a simple gummy. She slept through the night.
That experience made me aware — painfully so — of my own hypocrisy. While she found healing through a plant I had long dismissed, I was numbing myself each night with alcohol — not to enjoy, but to stop feeling, to force sleep. I told myself it was normal, acceptable, even earned. But it wasn’t helping.
It wasn’t until I was helping a client — a veteran — through her VA disability claim that the truth caught up with me. She confided in me about her fear of admitting she used marijuana to manage anxiety and sleep. I told her what I believed: that she shouldn’t be ashamed, that seeking help isn’t weakness, and that medical care, when legal and responsible, is private and protected.
Then it hit me like a mirror.
How could I coach her toward honesty and healing while denying myself the same?
That same day, I called my wife’s physician, scheduled an appointment, and applied for my medical marijuana card. Since then, I take a gummy every night. I sleep. I think more clearly. I drink less. I feel present.
My view has changed completely — not because of politics or persuasion, but because of experience. What I once called weakness, I now see as wisdom. The real weakness was refusing to see past my own judgment.
In Florida, medical marijuana has been lawful since 2016. But for me, it only became personal when life humbled me enough to listen.
The more I experience life, the more I understand that nothing truly changes until we become aware. Awareness brings empathy, and empathy brings wisdom. And wisdom — I’ve learned — is not the privilege of youth, but the product of life lived honestly.
What will my life be like in 3 years?
I dare not answer the question.
That was my first response when someone asked where I see myself in three years. Without hesitation, fear stepped in — not fear of failure, but fear of imagining life beyond now. Beyond her.
Yesterday, my wife finalized her cremation plans. I’ve done this before — for my sister, for my father. Each time, it became a necessary transaction. Paperwork, signatures, polite condolences exchanged over a table that felt too small for the weight in the room. The funeral director came to the house. We completed the forms. She paid for her services. Efficient. Respectful. Businesslike.
It’s best to do this before it happens, they say — so there’s one less thing to cause anxiety and pain.
But is that really true? Or is it that I just didn’t want to do this again?
Because the truth is, no matter how many times I’ve faced loss, I still don’t know how to prepare for it. I can manage logistics, but not emotions. I can sign the papers, but not the permission slip to move forward.
When I think about the future — traveling, my children, my new grandbaby — I feel guilty. There’s a horrible tension between the yearning to be free and the desperate wish for this stage of life to never end. How do you reconcile wanting relief and wanting permanence at the same time?
Maybe that’s what being human really is — living inside the contradiction.
We spend our lives trying to control time, plan for tomorrow, build systems, write goals. But life keeps reminding us it doesn’t belong to us. It moves with or without our consent.
Three years from now, I don’t know where I’ll be. Maybe I’ll be standing somewhere new, lighter but not the same. Maybe I’ll still wake up some mornings expecting to hear her voice. Maybe I’ll finally find a kind of peace in the not-knowing.
Because the truth is, none of us can control life. We can only honor it
Where will I be in 3 years…..
It Takes a Village: The Realities of End-of-Life Care
Yesterday was one of the hardest days yet. My wife, Sherri, whispered that she wished for death. Her pain was unbearable, even through layers of medication. Her bed sore reopened, two abscesses formed in her mouth, and the ache from her brittle bones and unhealed surgical site—after eight surgeries, two wound vacuums, and countless antibiotics—was relentless.
We took her to the dentist, who could do little more than write a referral to an oral surgeon. In that moment, I realized what Sherri already knew: sometimes, the course of care no longer offers a path worth taking. The procedures, the pain, the waiting—none promise comfort or meaningful recovery.
Yet, it takes a village. Her sister, her cousin, and her circle of friends have become our lifeline. Their presence gives her strength. She lights up when they visit, laughs, and feels alive again. But the cost is steep—those moments of joy are followed by hours of exhaustion and pain. Now, every visit, every appointment must be weighed against what it will take from her.
I see couples in the hospital—older than us—one sick, one trying to navigate the maze of care while barely able to support themselves. Too often, they end up alone in nursing homes, fading quietly. I’m grateful I’m still strong enough to help Sherri, even if I know there will be a toll later.
End-of-life care isn’t about heroics or procedures—it’s about presence. It’s about conserving what’s left of the body’s strength and surrounding the spirit with love. The truth is, medical science can extend life, but only community—family, faith, and friendship—can make it worth living.
When Love Meets the Machine
Day eight of what was supposed to be a three-day stay.
That sentence alone tells you everything about the state of modern healthcare.
As the disease progresses, it creates complications. Those complications summon specialists—each skilled, each confident, each siloed. They gather to form what they call a “care team,” but to the family it feels more like a committee meeting in slow motion.
Every decision takes time.
Every delay steals time.
Consensus becomes a currency that the patient can no longer afford to spend.
To them, this is process.
To us, it is life slipping away.
I find myself fighting thoughts I wish I didn’t have—the kind that whisper that the longer they keep her, the more they bill. That every new consult means another code, another line item, another form. I hate thinking that way. But when you’ve seen the system from the inside, you know how profit hides behind protocol.
Now, her body bears the evidence of the wait—bedsores, failed IVs, and pain so sharp it carves through every ounce of composure. Even the specialists with ultrasound guidance can’t find a vein. The solution: another procedure, another trip to the OR for a Hickman line. More anesthesia. More risk. More time.
And through it all, one question hangs in the air like a prayer caught in the static of bureaucracy: Can she just come home?
But to come home requires insurance approval, a signature in a portal, a code entered correctly. Somewhere between the nurse’s station and the insurance carrier, humanity gets lost. They don’t see her tears or hear her moans—they see a “case.” A “chart.” A “treatment plan.” While we watch the clock, waiting for Dilaudid that’s overdue and for someone—anyone—to notice that time is the one thing she doesn’t have.
This is what it feels like when love collides with a machine.
Profits Over Patients: Why the Insurance System is Failing Families
The health insurance industry has mastered one thing above all else: delay. What should be a simple claim submission turns into months of bureaucratic limbo, hidden behind jargon like “not yet built” or “waiting for processing.” These phrases disguise the truth—that while families wait for critical financial support, corporations sit comfortably on record-breaking profits.
We are told to expect 15 business days just for a claim to be reviewed, then another 30 to 60 days for processing. In the meantime, representatives admit that claims often sit in inboxes, unseen, until patients themselves call to shake the system awake. And yet these same companies proudly announce hundreds of millions in net income, raising their performance outlooks. The disconnect could not be starker: efficiency for shareholders, inefficiency for patients.
This is not a matter of capability. If profits can soar, systems can be fixed. More staff can be hired. Processes can be modernized. But the lack of urgency shows where priorities lie. Patients and families are left to wait, wonder, and absorb the financial strain—all while the corporations built to serve them choose margin over mission.
And this isn’t an abstract critique. This is personal. The claim in question was for my wife’s electric wheelchair—a necessity, not a luxury—purchased on June 9th. It cost more than $2,000. I wrote about it on June 23rd in my blog post “In the Blink of an Eye: Grace in the Midst of the Unthinkable”, where I shared how something as simple as mobility could restore dignity in the midst of suffering. Months later, the claim has still not been processed. Letters arrive contradicting what agents say, and the only reason any progress happens is because I chase it down.
For families like mine, these delays aren’t just numbers on a balance sheet. They are nights spent worrying, bills that pile up, and faith that slowly erodes. Representatives on the front line may show compassion, but they are trapped in a system designed to stall. Until the industry prioritizes people over profit, these “micro” frustrations will continue to echo the much larger, systemic failure of our healthcare system.
You can read the June 23rd post here: In the Blink of an Eye: Grace in the Midst of the Unthinkable
The Front Lines of Cancer
Yesterday, we reached acceptance. Not surrender — not quitting — but an understanding: this cancer is incurable. It continues to spread slowly, like a snake coiling itself around its prey.
And yet, in the middle of it all, there is beauty.
Our youngest is in high school now. She wakes up on her own, gets ready, eats breakfast. She is excited about life. She’s playing lacrosse, wants to go to practice, wants to do well in school. It’s such a good time.
The other night, my wife told her that she wanted her to have her wedding ring. Tears came, but then laughter too, as our daughter said it was too small for her finger. Somehow, the moment turned to a joke about making it into a “grill” for our dog with the terrible underbite. This is life and love — sorrow and laughter tangled together.
This weekend, our oldest came home. She’s about to start graduate school after years of working. She asked her mother, “Are you going to die?” My wife, steady as ever, said: “I will — but I don’t intend to do it soon. You need to go to graduate school and live your life. This is your dream. Keep going.” Then she gave her the diamond pendant we had made from her mother’s stone. They cried for hours.
One of our sons is getting married in October and then heading into the military. We already have our plane tickets and hotel. No setbacks. We will be there. We’ve become experts in travel planning and stress mitigation, as Sherri can only manage about two hours of chair time a day. No setbacks — we so want to be there.
And then there’s our granddaughter. Just 18 months old, already going down slides. We watched the video of her laughing all the way, and it filled us with joy.
It is a wonderful time.
That might sound strange to say, but it’s true. In these trying days, every moment of laughter, every milestone, every piece of ordinary life feels even more precious. The weight of suffering sharpens the beauty of joy. And when you know that time is short, you hold tighter to the moments that matter most.
Every morning, I bring her breakfast in bed
Every morning, I bring her breakfast in bed. Whatever she wants—peanut butter on a waffle, an apple, crispy bacon, a bowl of raisin bran, sous ve eggs—I make it. Most days, she’ll stick to the same thing for days, even weeks. It’s a small thing, but it’s the least I can do for all she endures.
She can’t walk anymore. The electric wheelchair gives her about an hour and a half of mobility before the pain forces her to lie down. The cancer has spread to her bones. Yet, somehow, she still smiles. She still refuses to give up.
Breakfast has always been my favorite meal. Now its much more than that, its a check in with a smile still here.
Two Hours for a Shower—And a Lifetime of Love
Today it took two hours to help my wife, take a shower in our own home.
Two hours of lifting and moving, of prepping and adjusting.
Unhooking her IV.
Unwrapping layers of dressings and wound care.
Lining the shower with towels and placing the chair just right.
Washing her hair, combing it gently.
Finding clothes that work for a body in pain.
Changing the linens, warming the room, preparing her toothbrush—preloaded with toothpaste because her hands don’t work anymore.
Two hours of effort.
For 30 minutes of normalcy.
For 10 minutes of comfort.
For one more moment of feeling clean and human.
And then back to bed, with the “bear hugger” blowing warm air to keep her body from freezing. Her body can’t regulate temperature anymore.
She smiled when it was over.
But she’s tired.
I’m tired.
And tomorrow… she faces her third surgery in just 60 days.
We had held on to hope that she could go on the family trip to Japan—something she’s been dreaming of for a year. But this new surgery means she’ll stay behind, once again watching life from the sidelines of recovery.
That’s what cancer does. That’s what infection does. That’s what caregiving is.
It takes things—quietly, relentlessly.
It takes time, energy, tears, sleep, plans, dreams, vacations, strength.
But we keep giving. Because love gives.
I won’t give up hope.
Not today.
Not tomorrow.
Not on her.
She’s still here. Still smiling through it. Still fighting. Still loving us in her own quiet way.
So we’ll keep going.
One day at a time.
One shower at a time.
One breath at a time.
Because this is what love looks like when it’s on the battlefield.
The Power of Presence: How to Support Caregivers
When someone you love is gravely ill or bedridden, the world becomes very small. The walls of the home close in. Time slows. Days blur together. Both the person being cared for—and the caregiver—begin to live in a kind of suspended animation, where joy, spontaneity, and connection are replaced by routine, worry, and waiting.
People often ask, “What can I do?”
And it’s a sincere question. They want to help. So they send flowers. Cards. Food. Gift cards. And all of those are kind gestures. All of them are appreciated.
But if you really want to help a caregiver—and the person they’re caring for—be present. Show up.
Caregiving is not just physically exhausting. It’s emotionally isolating. The one who is ill is often trapped in their body, in their symptoms, in a bed they can’t escape. The caregiver, meanwhile, is trapped in responsibility, routine, and quiet desperation.
Isolation is the great thief.
It steals joy, perspective, and sometimes even hope. But when someone walks through the door just to be there, everything changes—even if only for a little while.
Here’s what you may not see:
When visitors come over, something shifts.
The house feels lighter.
The person being cared for suddenly wants to sit up straighter, to smile, to tell stories—even if they can’t move or speak much.
The caregiver may finally exhale, just a little.
You don’t need to bring anything. Just your presence. A shared moment. A hand held. A joke told. A prayer whispered.
It’s not about what you do. It’s about that you came.
We often overcomplicate compassion. We think we need the “right” thing, the perfect timing, or something polished and proper.
But love isn’t complicated.
Compassion shows up unannounced and says, “I’m here.”
It’s the ministry of presence.
So, if you’re wondering how to help:
- Visit. Even 15 minutes can be sacred.
- Sit. Watch a show, listen to music, share a memory.
- Talk. About something—anything—besides illness.
- Listen. Sometimes just being a witness to the struggle is a gift.
- Stay connected. Don’t let their world shrink without a fight.
Because at the end of the day, love looks like presence. And presence heals in ways medicine can’t.
AI Can’t Care – Why Human Trust Still Wins in a Tech-Driven World
In a world that feels increasingly automated, one thing is becoming clearer every day: people still crave connection. Especially when they’re hurting. Especially when they’re trying to navigate something as emotional and complex as the VA disability claims process.
At LOUJSWZ INC, we embrace technology. We use AI to make our work more efficient, more accurate. But AI is not our product. Our product is trust. And there isn’t a line of code out there that can replicate that.
I recently sat down with a fellow veteran who shared how rushed his transition was and how unsure he felt even after submitting his claim. He used the free services available to him—VFW, county VSO, mobile VA outreach—and still felt like something might have been missed. And you know what? He’s not alone. That “what did I forget?” feeling is far too common.
There are tools now that can read disability guides and recommend conditions. They’re fast. They’re free. But they don’t know how to look you in the eye and ask, “What really hurts?” They don’t hear the pause in your voice or notice the symptoms you forgot to say out loud. They don’t walk your journey. I do. I have lived it.
Porter’s Five Forces tells us that AI is shaking every industry—lowering barriers, increasing buyer power, and making substitutes more accessible. But it also tells us something else: the key to success in a competitive landscape is differentiation.
LOUJSWZ isn’t just another support service. We’re your battle buddy through bureaucracy. We know the system, yes—but more importantly, we know you. And we’re here to make sure you get what you’ve earned. No shortcuts. No automated empathy. Just people helping people, with the support of the best tools available—not the replacement of them.
Because at the end of the day, AI may shape strategy, but it’s still heart that shapes trust.
