“Holding On: A Caregiver’s Reflection on Love, Loss, and Living in the Now”


My wife came home today.

After nearly a month that felt like a lifetime—through the emergency room, the operating room, recovery, and finally a rehabilitation hospital—she is back, sitting at the kitchen table with our daughter and her sister. They’re talking about summer camp. It sounds so normal. It looks so beautiful. And yet, nothing about this is normal.

She has four broken bones—fragile from cancer that has metastasized into her bones. She cries now, often. More than I’ve ever seen in all the years we’ve been together. Her voice is quiet. Barely audible sometimes. She has only her hands now to guide her through the world, needing an automated wheelchair that still hasn’t arrived because insurance bureaucracy doesn’t move at the speed of human need.

I was ready to buy one. But she said, “No. We’ll wait.” And so we do. Because this is her journey. And while everything in me wants to fix it—to make it easier, faster, better—I know what she needs most is for me to walk beside her, not ahead.

This is not my first time walking this path. I’ve been here before. With my sister. With my father. But knowing the route doesn’t make it easier. It just makes the heartbreak familiar.

Yet she continues to defy the odds. She is part of the 3% who’ve made it this far. A walking miracle. A living lesson in endurance. So we stay grateful. We stay hopeful. We keep our chins up—not just for her, but for ourselves and everyone around us.

Caregiving is the quiet battlefield. You fight fatigue, frustration, and the aching helplessness of watching someone you love suffer. You become nurse, advocate, counselor, and spiritual anchor—all while trying to remember who you are.

But caregiving also sharpens your vision. You begin to see what matters.

It’s the sound of her voice, barely above a whisper, joining in a conversation at the table.
It’s the laughter that somehow still finds its way into our home.
It’s the love that survives even the most brutal storms.

We often think of time as a currency, but when you’re a caregiver, you realize it’s far more precious than money. It is sacred. It is fleeting. It is everything.

So if you’re reading this in the middle of your own storm, hold on. Don’t just wait for the clouds to pass—find the grace in the moments in between. Because even in the darkest stretches, there is light. Sometimes it’s a whisper. Sometimes it’s a smile. Sometimes it’s just sitting quietly at the kitchen table with the ones you love.

Hold onto that.

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About LOUJSWZ Inc.

Over 30 Years Experience in Leadership and Management across multiple businesses and markets. Expertise in Healthcare Administration, Sales, Solution Design, Pre-Sales Consulting, Proposal Writing, Capture Management, Funnel, Business Development, Federal Government and the Military MS, CPHIMS, FHIMSS. PMP, LSS GB

Posted on June 7, 2025, in Caregving, and tagged , , , . Bookmark the permalink. Leave a comment.

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